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Tittel Versjon
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Utgiver(e) Publikasjonstype
  • Norsk tittel - G-I-N Public Toolkit: Patient and Public Involvement in Guidelines.
  • Engelsk tittel -
  • Versjon - 2
  • Status -
  • IS-nr -
  • ISBN -
  • DOI -
  • Revisjonsdato - 01.09.2015
  • Neste revisjon -
  • Publikasjonsdato - 01.08.2012
  • Utløpsdato -
  • Utgiver(e) - G-I-N PUBLIC Steering Committee
  • Redaktør -
  • Publikasjonstype - Veiledere

In our first foreword, we wrote: “The toolkit is designed to be a ‘living document’. […] And as experience,
literature and methodology continue to evolve, existing chapters can be updated, and new topics can be
added.” Since its launch in 2012, the toolkit has been widely acknowledged and discussed; it has been presented in
workshops, webinars and at conferences. The G-I-N PUBLIC steering group has learned from these fruitful
discussions that the toolkit met a need by providing international experience and best practice examples to
share experience rather that to prescribe what to do. These discussions have also revealed further topics
that could be of interest for guideline developers or other toolkit users, like involving vulnerable patient
groups or including evidence from qualitative research in guideline development. Furthermore, technical
progress has enabled guideline producers to use web-based approaches for guideline development. This has
become a major issue for guideline organisations all over the world, even the theme of 2014 G-I-N

Conference in Melbourne was “Guidelines in the Digital Age”. These technologies may facilitate involvement
of broader patient and/or consumer communities. Moreover, DECIDE, a large, EU-funded project to improve
communication of guideline related content to health care professionals and to the public has generated
new evidence about how to produce patient version of guidelines. In the past years, involving patients or
consumers in other areas of health care research and provision gains more and more acceptance. Many
approaches and examples given in the toolkit haven proven to be relevant for other research specialists too,
as many of them seem to be generalisable. Therefore, the updated toolkit provides new chapters about these topics that have emerged since its first launch. We do appreciate that the HTAi Group on patient/citizen involvement has been willing to share their experience and resources when involving patients in health technology assessment, thus broaden the focus of the toolkit and offering advice also for other specialties.


Many people contributed to the relaunch of the toolkit. In the first place, we would like to thank the authors
of the new or revised chapters for their time and expertise. G-I-N PUBLIC steering committee members have
provided helpful feedback and comments. Jenna McEwan, Administration and Communications Assistant,
and Elaine Harrow, Executive Officer, from the G-I-N Secretariat worked exceptionally hard on proofing and
editing as well as organising the official relaunch at the Amsterdam conference.

October 2015

The G-I-N PUBLIC Steering Committee

Corinna Schaefer
Trudy van der Weijden
Antoine Boivin
Jane Cowl
Carrie M. Davino-Ramaya H
Javier Gracia
Loes Knaapen
Anne Hilde Røsvik
Carol Sakala
Duncan Service
Helen Tyrrell
Madeleine Wang